Educational Media

The Network has collected a number of articles and PowerPoint presentations about BCCNS over the past few years, and we're more than happy to share the information we've gathered. Our sister site has a lot of the articles and presentations online, but we also offer them on CD for free (though a donation to cover the cost of producing and mailing them is always appreciated and tax-deductible).

Educational Articles

Our CD of binder articles (PDF or Word format) covers a wide variety of topics relating to BCCNS, including

  • Dermatology
  • Jaw Cysts
  • Genetics
  • Obstetrics & Gynecological Issues
  • Eye Problems
  • BCCNS Through History and more

PowerPoint Presentations

A trio of PowerPoint presentations on BCCNS given by health care professionals familiar with the disorder.

Bitter Inheritance

In January of 2002, BCCNS patient and advocate Jim Costello was featured with his family in a BBC special titled, “Bitter Inheritance.” The Network has DVD copies of the special available for ordering. A sample is shown below:

If you would like a copy, please let us know, and we'll send you one at the first opportunity.


Material © 2010-now BCCNS Life Support Network, unless otherwise noted.

DISCLAIMER: The content on this site is for informational purposes only. It is no substitute for professional medical advice, diagnosis, or treatment.
Reliance on any information provided on the site is at your own risk. Always seek the advice of a qualified health care provider with any questions you may have about your condition.