Nevoid Basal Cell Carcinoma Syndrome

(Gorlin Syndrome & Basal Cell Nevus Syndrome)

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Organizations:
American Cancer Society
American Academy of Dermatology
National Organization of Rare Diseases
Genetic Alliance
Gilda's Club
Roswell Park Cancer Inst.
Oral, Head & Neck Cancer Support
Cleft Palate Foundation
Coalition of Skin Disease

Email:
Patient Advocate
Skin Cancer Foundation

Other Links
 United Kingdom Support Group


Online Support:
BCCNS Life Support Network
Patient Forum
The Quarterly Advocate (Newsletter)
Diagnostic Features
Patient Survey
Skin Cancer Treatment Options
Find a Oral/Maxillofacial Surgeon
Find a Mohs Surgeon
Find a Plastic Surgeon
Vitiligo Support Group

Research:
Gene Isolated
Mice w/ Gorlin Syndrome
Dr. Ervin Epstein

 

This website is dedicated to providing information to patients with Nevoid Basal Cell Carcinoma Syndrome (NBCCS), their families, friends, support people, and health care providers. NBCCS (also known as Gorlin-Goltz Disease, Gorlin Syndrome, and Basal Cell Nevus Syndrome) is a rare genetic disorder effecting children and adults in families around the world. The website and it's contents are made possible by the dedicated officers & members of the BCCNS Life Support Network, and the people that sustain it.